Calgary woman granted right to die was an inspiration and agent of change, says best friend

TheCalgary woman who was just granted special permission to end her life with help from a doctorwas an "absolutely remarkable person" who knew exactly what she wanted, andwas determined to overcome the obstacles in her way, according toone of her best friends.

"She is an inspiration. She knew where she was going. She's always been an agent of change in life," said Ms.V, a professor emeritaat the University of Calgary, who was at her bedside when she died.

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Ms. S was a psychologist whounderstood herself and knew her own mind, said Ms.V.Neither woman can be identified because ofacourt-ordered publication ban.

She had been contemplating doctor-assisted death for the past three years after receiving her ALS diagnosis in 2013.

By July, she was resolute,Ms.Vsaid.

"She continuously was asked, 'Do you want to go ahead with this? We can change it at any time.'She always gave us the thumbs up sign her eyes were always with us," said Ms.V.

"I said to her, 'I often feel like I'm on two tracks. One track is I don't want to lose you. You're my dear friend. I've known you for 34 years. Iwill feel your loss every day of my life,'" Ms.Vsaid.

"The other track is, 'You've already made a decision. You know what the obstacles are ... you know what we have to try to get through.'"

Ms.Vsaid Ms. S felt incredibly supported by the ALS society and clinic in Alberta, but she did not want to continue living in constant pain.

On Monday night, Ms. S ended her life inVancouver with the help of two physicians after receiving a legalexemption to do so fromAlberta Court of Queen's Bench Justice Sheilah Martin.

"It was sad, but it was also enriching," M.V.said."I think we did something ... that will open doors for many people."

Difficulties of assisted-dying in Alberta

Ms.S had applied and beenapproved to end her life atSwitzerland's euthanasia clinicLifecircle, but as her condition became more disabling, it became apparent that the long journey would not be possible.

"It's thinking of all the things that could go wrong. She's on a feeding tube. She gets water through her tube. Her neck is in a brace. How are we going to manage the long flight?" Ms. Vsaid.

Though Canada's current law allows doctors to assist individuals in ending their lives underspecial circumstances, few if any professionals in Alberta wereinterested in helping Ms. S,Ms. Vsaid.

"Try and find a physician who's willing to do this in Calgary. Try and find even a lawyer."

Ms. Vsaid she sent lettersimploring Alberta's Health Minister Sarah Hoffmanand Alberta Health Services for assistance in locating a doctor who would be willing to assist, but to no avail.

"Certainly it would have been a lot easier to travel within Calgary, because every movement was painful for her," Ms. Vsaid.

Better guidelinesneeded, says doctor

Through a friend of a friend, Ms. S was put in contact with Dr. W, a clinical professor at the University of British Columbia andone of the doctors that ultimately helped Ms. Send her life in Vancouver.

"It was really a privilege, and it was an honour that she trusted me with this," said Dr. W.

"Usually, somebody end-stage ALS, a doctor feels so helpless. All you can do is sedate.

"Here, she wanted to have an assisted death, and we could do it. I could do it. I could actually help her."

Dr. Wsaid guidelines fromtheCollege of Physicians and Surgeons of British Columbia helped her navigate the process, but that it was challenging toacquirethe necessary medications because pharmacists in the province have not received similar directions from their organizing bodies.

Dr. Wsaid she has only received positive feedback andhopes to see other physicians step forward as willing to provide this service.

"This woman had to travel from one province to another, and that's terrible," she said.

"She should have been able to have this service in her own home," she said.

While Ms. Vwas not able to speak to the total cost of the process, sheacknowledged that itwascumbersome and what many would consider prohibitively expensive.