Staff restrictions, lack of PPE endangering Albertans with disabilities, advocates warn

After Garry Bartsch's wheelchair cushion lost air pressure,his backside began to bruiseand swell.

His new home care worker failed to notice, but fortunately it was detected bya more experienced worker on the next shift.

"It is scary because once you get a pressure sore they may never heal and your life is impacted forever," said Bartsch, pointing outactor Christopher Reeve died of complications from an infected pressure sore.

"That's why we need the people who have been with us forever. Andwhen they're just yanked away from you, just like that, it throws everything into shambles."

Bartsch, who is paralyzed from the chest down, relies on a caregiver for tasks such asbeing transferred from bed, cleaning, grooming and exercise.

But measuresto contain COVID-19 are undermining hisability to find and retainexperienced staff. One worker quit, another withdrew her application. Bartsch fears what lies ahead.

"The most important part is, is somebody going to come to my house to get me up or to put me to bed? That's the crucial thing," he said in an interview Monday.

Is somebody going to come to my house to get me up or to put me to bed?- Garry Bartsch

On March 25, Chief Medical Officer of Health Dr. Deena Hinshawprohibitedsupport workers from workingat multiple locations. The April 23 deadline was later postponed.

"We have delayed implementation to address the workforce issues," wrote Tom McMillan, spokesperson for Alberta Health, in an email to CBC News. "Operators who are subject to this requirement have been provided with guidance and updates directly from AHS and Alberta Health."

Bartsh is one of roughly 1,750 Albertans who currently participate in the province's Self-Managed Careprogram in which they oversee their own home care.

Caregiversthey hire tend to work at multiple locations because of the part-time, low-paying work.

Due to the health order,many of those workers are opting for facilitiesthat offermorehours, said Olle Lagerquist, CEO of Spinal Cord Injury Alberta.

'Order is dangerous'

"This provincial order is dangerous to our clients receiving self-managed care as it removes those skilled workers they have depended on for years to care for their complex medical needs," Lagerquist said.

"When you have the physically disabled population at home, and they're not getting the right care,you've got a lot of conditions that happen that are life threatening. You know, pressure sores are not just little things that happen. Pressure sores are things that kill a huge percentage of the population."

Lagerquist said the worksite restrictionand deferral have not been properlycommunicated. The orderprompted a flurry of anxious calls to caseworkers at Alberta Health Services andAlberta Health, he said.

Last week the United Nurses of Albertafiled agrievance seekingclarity from AHS on how it intends to apply the order which the union said could result in confusion and staff shortages.

Lagerquisturgedthe province to take a different approach.

"If proper PPE(personal protective equipment) was provided to all care workers and clients this could minimize the risk of infection while allowing the standard of care that is necessary to keep our clients alive," Lagerquist said.

• 'We feel forgotten': Disability community overlooked during COVID-19, families say

But he saidAHS caseworkers have been telling Self-Managed Care participants to purchase their own equipment despite alack of availability.

"Picking somebody up from a bed, transferring them and putting them in a shower that is very dangerous in terms of transmission of course, and this is being done, and people are showing up without personal protective equipment," Lagerquist said.

"If we have enough personal protective equipment to ship out of this province, why do we have workers going into homes without personal protective equipment?"

In mid-April, Premier Jason Kenney announced the province was shipping 750,000 N95 masks and 30 million gloves to other provinces.

New way to access PPE

After CBC's inquiry, AHS said it was developing a way for equipmentto be supplied to Self-Managed Care workers.

"AHS is currently adding another access point for all SMC clients and their healthcare providers to get appropriate PPE," spokesperson Kerry Williamson wrote in an email Tuesday.

"In addition to all SMC clients having access to their case manager to assess the PPE needs for themselves and their workers, they will soon be able to order/access PPE through a standard process in the coming days."

More information will be shared once the process is in place, Williamson said.