Province should consider 'advanced consent' for Alzheimer's patients in assisted dying law, urges MNA

Granby MNA Franois Bonnardel personally knows the toll Alzheimer's disease can take on a family.

Bonnardel's mother was diagnosed with the disease about 15 years ago, and it has progressed to the point that she no longer walks, laughsor recognizes him at all.

Earlier this week, a Montreal man was charged with second-degree murder in connection with the death of his wife, who family members say had been living Alzheimer's.

Bonnardel said in the wake of that incident,he believes it's time to reopen the province's doctor-assisted dying law and consider adding a section that would give people the right to consent in advance.

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"I'm sure the discussion will be difficult for lots of people, but for me, I think that right now, in 2017, it's time to have the discussion again," said Bonnardel, a member of the Coalition Avenir Qubec, in an interview with CBC Montreal's Daybreak.

Speaking to reporters on Friday, Quebec Premier Philippe Couillard said the debate around advance consent is "very delicate."

"If all political parties agree it's time to put the question back on the table, we canand will have that discussion," said Couillard.

No advanced consentin Quebec nor in Canada

Canada and Quebec currently have two separate laws governing medical assistance in dying.

Quebec's law, which is narrower than the recently passed federal version, requires that applicants "be at the end of life."

The federal law restricts doctor-assisted death to adults with a "foreseeable" death.

Neither law allows for advance consent, which would allow terminally ill patients to express their interest in medical aid in dying while they are still cognitively competent.

Alzheimer's patients still have quality of life

Line Vincelli, the owner and manager of La Rsidence Outremont, a home that catersmainly to people living with Alzheimer's disease and dementia, said it's still possible to maintain a good quality of life, even with the disease.

She said that, if advance consent is allowed, people receiving a diagnosis will sign up for a medically assisted death out of fear that they will eventually hurt their family otherwise.

"They will make the decision for their children, just not to be a burden," said Vincelli.

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She believes that, if more money and resources were available to family and caretakers, there wouldbe fewer people who would consider advanced consent.

Question of humanity

Bonnardel said he regrets that after his mother was diagnosed,he never discussed with herwhat she would have wanted and what quality of life she would have accepted in the years to come.

If she had given advanced consentto die, Bonnardel said, it would have been difficult to accept, but now he understands.

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Couillard said this debate is not only about a law, it's also a question of humanity and how weand our parents want to be treated.

"There's hope that exists. The solution isn't always to put an end to your life," said Couillard. "There can be other solutions."

"But I am not closed to the discussion."