Quebec parents of autistic child call therapy wait times 'appalling'

Sam Kuhn and Lynn Buchanan say their five-year-old autistic daughter has been waiting four years for access tointensive behavioural therapy.

"It's appalling," said Kuhn. "Our daughter needs speech therapy and she's not getting it."

Kuhn, along with other parents of children with autism, have organized a demonstration this morning to protest these wait times.

The family's social worker informed them last week that their daughter Charlotte'scase was no longer considered high priority by a local treatment centre.

Currently, for children diagnosed with autism between two and five years of age, Quebec pays for 20 hours a week of applied behavioural analysis therapy.

But the wait times in Montreal in particular are known to be long.

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Charlotte can only say between three and five words and gets easily frustrated in kindergarten class when other students and teachers can't understand her.

"It's not about us. We don't want to jump the queue," he said. "We want kids in Quebecspecial needs kids, autistic kidsto get the funds they need so they can hire therapists."

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Wait times'a huge concern for families'

Marc Lanovaz, an autism expert and University of Montreal professor, says wait times for ABA therapy in Quebec are a huge concern for families.

"You can wait 12 months to get a diagnosis, and then you wait another 18 months to get services when you know that the earlier you start your services the better the potential outcome for your child can be," he said.

This December, the Quebec government is expected to release an action plan on access to autism services in the province.

Lanovaz says expectations are high, especially when the Ontario government provided $333 million in funding for autism services earlier this year.

"I'm not sure what it's going to look like in Quebec but we have hope that it will address some of these issues, especially regarding early intervention," saidLanovaz.

But Kuhn and his family are less optimistic. They've launched a crowdfunding campaignto pay forprivate therapy for Charlotte.