N.L. needs organ donor education before an opt-out program, experts say

January 18, 2015 is adayseared into Jonathan Hickman's memory.

That's the day he flew to Halifax with his sister, so she could donate one of her kidneys to replace one of his, which was damaged at birth.

"I'm one of the lucky ones," he said, recalling the 45 tired and wornyearsprior to the transplant, where he missed out on things like spending time with his young family due to his compromised health.

"I've got a new life."

Now, as the director of Newfoundland and Labrador's chapter of the Canadian Transplant Association, he's watched with interest as Nova Scotia introduced legislation last week to make that province the first jurisdiction in North America to have presumed consent for organ and tissue donation.

Once passed, that means most Nova Scotianswill automatically be signed up to donate organs, and would have to opt out of doing so.

Hickmanwould love to see Newfoundland and Labrador follow suit with a catch.

"I think it's an important step forwardto helping awareness of the importance of organ donation," he said, "providing there's an education component that goes with it."

Uncomfortable discussion

About 4,400 Canadians are waiting for organ donations, said Hickman, although how many of those are Newfoundlanders and Labradoriansishard to discern. All organ donation happens out of province, either in Halifax or Toronto, and many people in need fromthis province spendchunks of their life waiting in those cities.

In order to lower the number of people waiting for an organ,education has to happen on both sides of the gurney, said Hickman.

Doctors and other medical professionals need training to know how to broach what can be a difficult conversation, while families need to know they should be having donation discussions well ahead of the fateful day.

"That's really where the biggest catch is right now. People keep saying, 'oh yes,Iwould definitelylove to pass on my organs,' but they don't let their family members know," he said.

"When that unfortunate day happens,the emotions sometimes overrule what your final wishes are. So if you don't have that conversationwell in advance when things are good, it can sometimes be missed."

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To help those conversations happen, Hickmanhopes the provincial government will pick up the reinsand provide organ donation education and awareness.

'Very poor' donation rates

Newfoundland and Labrador's health minister agreed that education is key in increasing organ donation here.

The province's donation rates "are very poor," and "we must do better," John Haggie told CBC Radio's St. John's Morning Show.

• Nova Scotia to become 1st in North America with presumed consent for organ donation

"The only question really, is how do you do that?" he said, adding that the answer does not involve joining Nova Scotia in an opt-out program, forthe foreseeable future.

Haggie pointed to Spanish and Portuguese examples where presumed consent lawsdid not lead to a boost in organ donations. But he said that doesn't mean he won't be paying attention to Nova Scotia.

"The bottom line is, if they can show it works, then we're interested," he said.

What has worked in Spain and Portugal, said Haggie, was bringing in more training for health care workers and awareness programs, a move he said Newfoundland and Labrador is already mimicking.

"We started putting those supports in place about twoyears ago, and we have not really yet seen what the results of that are," he said.

In the meantime, people can stillchoose to become organ donors by updating their MCPcard, a process Hickman said takes just a few minutes to do, by filling out an online form and sending it in.

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