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Nova Scotia

Kalydeco now included in Nova Scotia Pharmacare program

The Nova Scotia government has included a cystic fibrosis drug used to help manage a rare form of the disease, in the provincial pharmacare program, but the cost per patient still isnt known.

Province won't release drug costs under deal with manufacturer

Tim Vallillee of Wilmot, N.S., gained access to cystic fibrosis drug Kalydeco. After receiving tremendous results in just a couple of weeks, he said his drive to get the drug into the hands of more people with cystic fibrosis amplified. (Elizabeth Chiu/CBC)

The Nova Scotia government has included a cystic fibrosis drug used to help manage a rare form of the disease in its provincial Pharmacare program, but how much the province will pay for the expensive medicationisn't being released.

The province says it has come to an agreement with the manufacturer, Vertex Pharmaceuticals Inc., but a health department spokesman said the cost won't be disclosed to the public.

All of our agreements are confidential and details such as cost is proprietary information, Tony Kiritsissaid in an email to CBC News.

Kalydeco has been hailed as a breakthrough medication, but the company has typically charged$300,000 a year for the average patient.

Some patients were able to reach an agreement on their own with the drug maker, and receive the medication for free underthe company'scompassionate care program.

Kalydecois now included on the list of covered drugsand is available to Pharmacare patients six or older who carry a specific gene related to cystic fibrosis.The rare cystic fibrosis mutation is called G551D.