What this N.S. woman wants others to know about donating an organ to a stranger

Katy Hopkins doesn't consider giving up one of her kidneys to a stranger to be a big deal.

Ask the 43-year-old Queens County, N.S., woman why she spent 19 months undergoing tests and driving a total of 4,000 kilometresto and from appointments, and she answers nonchalantly.

"Once I knew there was something inside me that someone needed more than I did, it just felt like my duty to give it to them," said Hopkins, who underwent surgery last December.

Thethree-hour surgery at the QEIIin Halifax went welland her recovery hasbeen "uneventful." In fact, the only complication has nothing to do with the procedure itself, buta little-known reimbursement issuethat Hopkins said both sheand her team of health-care professionalsweren't prepared for.

Because thestranger who received her kidney lives in New Brunswick, not Nova Scotia, her reimbursement claim of about $1,700has been held up for weeks.

"I was not expecting it to be as difficult as this. I thought I would just fill in a form and I would get it," she said. "Hopefully, this is something that no one else will have to think about."

Both New Brunswick and Nova Scotia Health say they'rere-examining their policiesto make it easier for people who choose to donate.

Hopkins, who moved to Nova Scotia from England a decade ago,wastalking with a friend one day abouthealth when the idea of organ donation came up.

"And I realized that I am fortunate enough to be really healthy without making any effort whatsoever," she said. "You know, maybe there's a way for me to share that with other people."

She had no idea she could donate an organ to a stranger, but aftera few minutes on Google,she realized that's what she wanted to do. In May 2018, she made the first phone calland then spent the next several months undergoing tests.

Healthy adults over the age 19 in Nova Scotia can donate a kidney after extensive medical tests deems it to be safe.They candonate to a friend or family member who is amatch, or theycan become a non-directed donor, which means they donate to a stranger anonymously.

Hopkins knows nothing about the person who now has her kidney, but she likes it that way.

"I hope that their life has gone back to normal like mine has," she said.

6 anonymous donors in 2019

The Multi-Organ Transplant Program of Atlantic Canada is based in Halifax and includesdonors and recipients fromNew Brunswick, P.E.I. and Newfoundland and Labrador.

There are between 25and 30kidney donors in the program each year, according to the Nova Scotia Health Authority, and last year,sixgave a kidney to someone they didn't know.

Provincial governmentscoverdonors'sexpenses, like travel, meals and time missed at work, so they don't take a financial hit if they choose to donate an organ.

But each province has itsown reimbursement policy, so when Hopkin's kidney ended up with a New Brunswick recipient, it required a different application under a policy she describes as "considerably less generous."

New Brunswick's policy doesn't cover mileage, only gas, and doesn't specifically mention donating to a stranger, she said.

Hopkins only learned there was a problem when she followed up with her donor team in January. She was expecting a cheque that month, but is still waiting on it.

"A lot of people have had to work quite hard to iron out this little flaw in the system," she said.

N.B. reviewing its policy

In an email, a spokesperson for New Brunswick's Department of Health said it can't comment on a specific case, but it's aware there are differences between provincial donor reimbursement policiesand it's working to address it.

"It is important to the department that no donor is deterred from the process due to the financial implications of these policies," spokesperson Alysha Elliott wrote in an email. "For this reason, the province is planning to undertake a cross-jurisdictional review with the intent to better align ourselves with our neighbouring provinces' policies on organ donor reimbursement."

The Nova Scotia Health Authority also declined an interview, but said it beganrevising its own reimbursement policy recently.

"Our ultimate goal [is] for all live donors to have financial neutrality. We look forward to working with teams in other Atlantic provinces to better meet the needs of those who chose to donate," itsaid in an emailed statement.

The health authority added that when a donor from any of the four provinces agrees to an anonymous donation, they are informed that their kidney may go to anyone waiting in another province who's a match.

It is important to the department that no donor is deterred from the process due to the financial implications of these policies.- New Brunswick Department of Health

Kathy Yetzer, senior adviser and program lead for living donation and transplantationwith Canadian Blood Services, said she's happy provinces are taking a look at their own policies to make the donation process easier.

"Many of the provinces I've heard are starting to relook at their current policies and trying to make them as consistent as they canor to help the patients be as cost-neutral as possible," she said.

Non-directed donors are an integral part of organ donation in Canada, saidYetzer, because they can help someone on a wait list in their region orbe part of thekidney paired donation program.

When a non-directed donor comes forward, they canbe paired with whomever is a medical match, then that person's non-compatible donor is matched with someone else, which creates a chain reaction, she said.

"People thinkwhen someone donates anonymously, they're only helping one person. They're actually helping hundreds of people," Yetzer said.

'Would have found a way to do it'

Since returning home from the hospital, Hopkins said she has a new appreciation for timeand she's trying to spend itwisely.Now, she makes an effort to get out of her home office and walk through the woods on her four-hectare property.

She's happy to know a kidney she didn't need has gone tosomeone in need.

She's still waiting for a cheque in the mail, but Hopkins said shedoesn't regret donatingan organ, something she hopes every Nova Scotian at least considers.

"I might have worked extra hard to stockpile some of my money to survive on, but it definitely wouldn't have changed my mind about doing it," she said. "Even if there was no reimbursement. I still would have found a way to do it."