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Nova Scotia

'This is my chance': People with disabilities highlight importance of independent living

In early June, the Nova Scotia government said it would clear the wait-list of 400 people with disabilities who want to move out of small option homes and other institutions by 2024. That has created both excitement and concern.

N.S. government has promised to move 400 people off wait-list for supported independent living by 2024

Heidi Gallant said she loves the independence of living alone but also having support workers come help her with things like groceries. (Steve Lawrence/CBC)

When Heidi Gallant moved into her new apartment in the Annapolis Valley, she felt truly at home for the first time.

"There was so much excitement," Gallant said."And I thought, 'Oh, my goodness, this is my chance to make my mark on the world. This is my chance to go out and do what I love to do, and just live.'"

Before the move, Gallant had been living since 2016 in a small optionhome for people with disabilities.

She has a form of brain damage that makes it hardfor her to remember some things, but she is capable of living with minimal support. She struggled with thelack of independence and self-direction in the small option home.

She blossomed whenshe was accepted into the provincial government's Independent Living Support program and moved into her own apartment in thecommunity.

'Everything has changed'

"Everything has changed," she said. "It's a beautiful thing to know that when I walk in this apartment, it's mine."

Gallant and many other Nova Scotians with disabilities understandthe importance of living independently. Butthere are400 people on the list for the support program who are waiting to move out on their own. Some have been on the list for close to 10years.

Earlierthis month, the provincial government promised to clear those 400 people off the wait-list in the next two years.This brought some excitement, but alsoconcerns about how it would be achieved.

Gallant sits at home with her support worker and friend, Jamie-Lynn Dowell. (Steve Lawrence/CBC)

The program provides funding for people who are semi-independent and requiresupport to live on their own.

When Gallant first heard she would be movinginto her own apartment, she started buying furniture and collecting decorations. Then herfunding was divertedand she was forced to wait two years before she could move.

"It took a very bad emotional toll on me and made me feel like I was worthless, that I was not fit for the program, and that I would never get to have my own space," she said.

Gallant said she's worried that others in similar positionswill get their hopes up when they hear the department's promise.

Patricia Neves said living independently can help people with disabilities improve their skills. (Steve Lawrence/CBC)

Patricia Neves, executive director of Inclusion Nova Scotia, said she was thrilled to hear the announcement, butshe would like more information from government.

"[I'm hoping for] an implementation plan that shows how they're going to accomplish it, whether that is hiring more people to facilitate the moves and to work with people ... and a plan for how they're going to build or renovate homes," Nevessaid.

Government response

Last year, 86 people moved off the wait-list and into independent livingas part of the program. That was almost twice as many 44 as the previous year.

In 2018/2019, there were only 29 newparticipants to the program.

This year's budget gave the program an $8.8-million boost.Another $17 million is expected next year.

Minister of Community Services Karla MacFarlanesaid the increased funding will help people transition to independent living, but didn't offer details.

"We have to remember that these discussions are happening with the service providers within our communities in Nova Scotia and with professionals and with the caseworkers," she said. "I have a lot of faith in them and trust that the plan is going to work."

MacFarlane said her department will be looking at both new buildings, and renovations to existing buildings, but she said the housing crisis is "always on her mind."

Harbourside Lodge

Neves said the time it has taken to phase out one of the smallest adult institutions in the province makes her concerned about the government's capacity.

The closure of Harbourside Lodge in Yarmouth was announced in 2020, but it is not complete.

"That was 27 people ... andthey haven't moved all of those people yet," Neves said. "So our concern is if they can't move 27 people in 18 months, how will they move 400 people in two years?"

A woman smiles at the camera
Claire McNeil is a lawyer with the Disability Rights Coalition. (Craig Paisley/CBC)

Claire McNeil, a lawyer with the Disability Rights Coalition, saidthe independent living support program is just one of a list of programs under the umbrella of the Disability Support Program.

According to 2021 numbers from the Department of Community Services, there are 1,691 people on the Disability Support Program service requestlist.

"They say they're going to eliminate the wait-list, but that's a little misleading," said McNeil, referringto the removal of 400 people from a much longer list.

Chantel Meister said the staff at the small option home surprised her with the news that she would be able to move out independently. (Steve Lawrence/CBC)

Chantel Meister is moving from a small option home in Halifax into her own apartment as part of the program.

She said the staff and fellow residents in the home were like family, but having a curfew, not being allowedto have friends overand having to ask permission to use certain items, like knives, took a toll.

She works at Cineplex, studies at Mount Saint Vincent Universityand is a member of a swim team.She also has autism andlearning disabilities.

Meister said she loves her new place. She wants to see other people have the same opportunity, and for the government to keep its promise.

"It's a home," she said."There shouldn't be wait lists likethis ... just because they have a disability doesn't mean that they aren't able to live on their own."

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