For people with cystic fibrosis, COVID-19 fear amplified

Chloe Lussier-Labelle says her doctor has been upfront with her. If she gets COVID-19, "it would be really bad."

Lussier-Labellehas cystic fibrosis, a genetic conditionthatcauses severe respiratory disease with no curethat makes patients more susceptible to lung infections. There are more than 4,300 Canadians living with the disease.

As the coronavirus continues to spread across Canada and around the world, Lussier-Labelle said she and her husband have gone into total isolation, indefinitely,to protect her health.

"I do acknowledge the fact that there is a very high risk I could die from this if I get that,"Lussier-Labellesaidduring a Skype interview from her Ottawa home.

She's urging Canadians to consider people like her who are "weakest," and start to take government recommendations more seriously by staying at home.

There's a lot more of usthan people might think, and we're definitely all around.- Chloe Lussier-Labelle

"If somebody were to see me on the street, theymight not necessarily think twice that I might be one of those people at risk of dying from this," she said.

Lussier-Labelle said the current social distancing measures implemented across the country may be "drastic," but they're necessary.

"It's in order to help ensure as much survival as possible, andthat those that are more at risk, and those who are more vulnerable, get the best chance possible to survive. There's a lot more of usthan people might think, and we're definitely all around," she said.

'Everything is dangerous'

Last year, half of the people who died from cystic fibrosis-related causes in Canada were under the age of 33, according toJohn Wallenburg, chief scientific officer at Cystic Fibrosis Canada. Wallenburg's own daughter died from the disease in 2014.

Wallenburg said Canadians with cystic fibrosisand their family membersare "incredibly nervous" as the number of confirmedCOVID-19 cases continues to climb.

"Everything is dangerous," to cystic fibrosispatients because they also have compromised immune systems, he said.

Wallenburg said cystic fibrosispatients often already have "tenuous employment situations," since they regularly have to take extended amounts of time off work whenever they get sick.

Those concerns have now ramped up, as more and more Canadians are out of work.

"There's a great deal of concern, not just for their health, but for ... anybody who is in a precarious situation socially,"Wallenburg said.

Waiting for a cure

Lussier-Labellesaid she's hopeful Canadians will accept "collective measures" to protect people like her.

Ottawa resident with cystic fibrosis says shes avoiding COVID-19 by isolating indefinitely

5 years ago

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Chloe Lussier-Labelle says seeing people ignore social distancing measures is frustrating when exposure to COVID-19 could have fatal consequences for her.

She and her husband plan to stay in isolation until"adequate treatments" for COVID-19 are found, even if and when measures are relaxed.

"Societyand global living are being tested, because we live in a very individualistic society," she said. "And I feel like the best way to ensure survival is if we work collectively as a society, as opposed to as individuals."