Families of students with special needs face stress, fears but online learning not entirely negative

This story is part of a CBC Newsseriesexamining the stresses the pandemic has placed on educators and the school system.For the series,CBC Newssent a questionnaire tothousands of education professionals to find out how they and their students are doing in this extraordinary school year. Nearly 9,500 educators responded. Read more stories in this serieshere.

Ashley Gibson-Taylor of Sudbury, Ont., was relieved when her six-year-old sonKaifinally got a spot in a class for students with special needs last fall.

Kai is diagnosed with attention deficit hyperactivity disorder (ADHD) and oppositional defiant disorder (ODD).Gibson-Taylor said thatonce he joined the specialized class, he quickly made "huge strides" with fewer meltdowns, lower stressand major academic gains.

When students were sent home in March due to surging COVID-19 cases, Gibson-Taylor was worried.

"My initial thought was, I've been fighting for him to get into this program since kindergarten, he finally got in in October, and now we have this roadblock. He finally got the opportunity and now it's gone."

Gibson-Taylor said the lack of school structure and supports at home had a quick and obvious impact.

"We saw about a year worth of regression within the first two weeks of him being home,"Gibson-Taylor said.

CBC sent a questionnaire to educators across the country. More than 9,000 responded, including 159 in northeastern Ontario, with dozens leaving additional comments.

The responses indicate that many students are struggling with at-home learning and the pandemic's disruption on education. Students with special needs are facing particular challenges, and parents and educators alike worry about future impacts, although there are some bright spots.

Educator concerns

In the CBC questionnaire, those who work with young peoplewith special needs were asked about the impact of this school year on students. The majority of the 20 special needs educators in the northeast who respondedsaidthey believe the challenges of this school year will have a psychological impact on some students, and that some students will not catch up academically.

Nothing I'm doing at home is enough for him. And I don't know what more I can do for him Ashley Gibson-Taylor, parent

One anonymous respondent wrote about the challenges of working with students with special needsduring the pandemic, saying educators "are not able to [provide] the students with the life skills they need due to COVID protocol."

"Online learning is impossible for special-needs students,"wrote another educator.

School and clinical child psychologist Todd Cunningham said that with the huge range of experiences and needs for students with special needs, online learning has not been entirely negative across the board.

"We have some students who have attention or self-regulation challenges who are actually loving the online environment,"Cunningham said, noting benefits like being able to "literally turn down the volume on the classroom."

But Cunningham said others need "systematic direct instruction"to help them develop skills something they're not getting in the same way in an online environment.

Worries for skills, self-esteem

Christa Morel of Sudbury said direct instruction is exactly what her four-year-old daughter needs. Rainaand her two younger siblings werediagnosed with autism spectrum disorder and global developmental delay. Morel said her attemptto get Raina to participate in online classes was short-lived.

"I can't even get her to pay attention to a laptop when her grandmother is on it, or when her favourite TV show is on it," said Morel.

While she's trying to maintain Raina's academic and behavioural skills through daily educational activities, Morel worries about where Raina's skill level will be when she returns to classand how she will handle the transition back to in-school learning.

Lise Orsini, an educational assistant(EA), shares concerns about howstudents with special needs will fare when they return to school. Since March,Orsini has had to adapt to providing support to students in breakout rooms in Zoom.

Orsini said she sees some students doing well with online learning, while others, particularly those with learning disabilities, are "having a hard time keeping up."

"I definitely feel that that will affect their self esteem and the gap in where they feel that they can go."

Thriving 'in spite of online learning'

Sara Kitlar-Pothierof Sudbury has spent this school year trying to maintain structure for her seven-year-old sonBohdan, who is on the autism spectrum. At the start of the school year, she made the decision to keep him and his younger brother Luka home, largely because of fears over disruptions to the school year, as well as safety concerns.

Kitlar-Pothier said she's lucky to be able to spend her days working one on one with her children, sitting by Bohdan's side and guiding him through his online lessons. She said he's thriving "in spite of online learning."

"I'm able to be there with him as an EA, as a teacher, giving him one-to-one attention," she said.

"I have the capability and the capacity to be able to do it, but I know lots of parents who aren't able to, and there's nothing wrong with that. Because I'm not a teacher, other parents aren't teachers, they didn't sign up for that, to be an EA, to work as therapists for their child."

Gibson-Taylor also guides her son Kai through his online lessons while her husband works during the day, and after she's finished her night shift job. While she has seen some improvements in recent weeks, including fewer meltdowns, the stress of taking on the roll of parent, teacher and therapist is taking its toll.

"It's really difficult. I feel every day like I'm failing him as a parent, because nothing I'm doing at home is enough for him, and I don't know what more I can do for him."

This story is part of a CBC News series examining the stresses the pandemic has placed on educators and the school system.Read more in this serieshere.