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Cases of fetal alcohol spectrum disorder up to 3 times higher in the GTA than predicted, CAMH report says

A study released Tuesday shows fetal alcohol spectrum disorder (FASD) may affect two to three times more children in the GTA than originally believed.

FASD is a leading cause of developmental delays in children in Canada,' report concludes

Scientist Lana Popova is seen examining a child in the southern African country of Namibia. She's studying facial features as a part of the FASD diagnostic process. (Lana Popova )

Astudy released Tuesday shows fetal alcohol spectrum disorder (FASD) may affect two tothree times more children in the GTA than originally believed.

FASD is an umbrella term describing three serious conditions that can happenwhen women drink alcohol during pregnancy. The result is often lifelong brain damage.

Dr. LanaPopova, a senior scientist atCentre for Addiction and Mental Health (CAMH), helped lead the new research. She explained its importance on CBC Radio'sMetro Morningon Tuesday.

The data at the heart of the new CAMHreport was collected by the from 40 schools in the GTA. This was the first-ever study of its kind in Canada, and was part of an international study for the World Health Organization (WHO).

"FASD is a leading cause of developmental delays in children in Canada, who in many cases, require lifelong assistance for health, education and social service needs," said Popova in a news release.

A total of 2,555 students, ages seven to nine, were studiedfrom thePeel, Durham, Halton, York andToronto regions.

Popova saysthey expected to find one per cent of students affected by the disorder, but the number landed between two and three per cent.

"Based on the large number of children who received a comprehensive assessment for FASD, we clearly show the scope of the problem, and the need for greater awareness to prevent alcohol use during pregnancy," Popova said.

She said more than one million people in Canada suffer from thedisorder.

Negative effectshappen early inpregnancy

"The negative effects of alcohol consumption on the fetus likely occurred before the mothers knew they were pregnant," Popovasaid.

Her information matches past research, which shows alcohol consumption causes the most damagethree to four weeks into a pregnancy.

Unfortunately, this is a stage when most women don't yet know they're pregnant.

CAMHinterviewed 173 mothers, most of whom said they stopped consuming alcohol after finding out they were pregnant.But around 10 per cent with a child with FASD reported continuing to drink.

The WHO is overseeing an international study of FASD in six countries. (The World Health Organisation )

Mostnever diagnosed

The study revealedthe majority ofkids and adults with FASD don't know they have the disorder, and Popova said most doctors don't know how it should be treated.

"More effective prevention strategies targeting alcohol use during pregnancy and surveillance of FASD are urgently needed," the study says.

TheWHO'sinternational study includes research from six countries.

The researchshowsFASDin Canada is three times more prevalentin remote northern communities.

With files from Mary Wiens