Parents with developmentally disabled children share fears of losing support

Fear of her son's next birthday is causingMary Beth Rocheleauto lose sleep.

Gregory is severely autistic. He's 16and in two years his funding from the provincial government will be cut off leaving the family to apply for adult fundingand join many others waiting to see if they'll be supported again.

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Rocheleauwas one of severalparents ofchildren with developmental disabilities who shared their concerns during a public meeting hosted by Windsor West MPP Lisa Gretzky Thursday fear ofthe future was a common theme.

"I'm scared to death," said Rocheleau."I don't sleep at night, thinking about what's going to happen with my son. When I don't have the funding, I really don't know what I'm going to do."

Can't just hire a babysitter

Like many at the meeting, Rocheleauhopes the government will change its policies before her child passes the current age limit. She said she'll be waiting and hoping for the next two years, but even parents of much youngerchildren are worried.

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"We are so dependent on our funding," explained Sherri Taylor who uses government money to pay for respite workers to help support hersix-year-old son with autism.

"We can't leave them alone with just anybody with their special needs. You can't just hire a 13-year-old babysitter," she added. "You have to have a respite worker and our workers are over $15 an hour."

Taylor said her family is "going broke" paying for her son's therapy out of pocket because it isn't covered by OHIP or insurance.

Gretzky plans totakethe parents' concerns and a petition to Queen's Park to challenge the provincial government on its support for families dealing with developmental disabilities.