Eating disorder patient seeks $60K online for health care

Canadians with eating disorders can face such long wait times for publiclyfunded treatmentspots that many patients depend on personal assets and private funding to get access to facilities.

Many end up with deep debt after emerging from treatment for psychological disorders. So Ingrid Davidson has turned to online fundraising at Indiegogo to generate cash to pay for her care.

"I'm dying ... and there's no help," says Ingrid Davidson, a 23-year-olddiagnosed with anorexia, depression and an anxiety disorder.

"It makes me so upset that so many people are suffering so greatly, and there is no help unless they're able to wait for months for funded treatment or they're able to pay."

• Feature: Eating disorders
• Private care 'last resort' for some eating disorder patients

According to the National Eating Disorder Information Centre, the prevalence of anorexia (self-starvation)and bulimia (binging and purging) is estimated to be 0.3 per centand one per centamong adolescent and young women, respectively.

"Prevalence rates of anorexia and bulimia appear to increase during the transition from adolescence to young adulthood," says the centre, a non-profit organization that raises awareness about the different types of eating disorders, including through its Eating Disorder Awareness Week that starts Feb. 2 this year.

Davidson, who has relapsed into an eating disorder first diagnosed in 2009, is now living in a Hamiltonhospital and hopesto use the campaign to generate $60,000 for specialized private in-patient treatment before the disorder kills her.

Davidson admitted herself to the hospital when she learned a publicly fundedoutpatient program couldn't accept her until March. While she didn't want her precise weight revealed,her body mass index droppedbelow what is considered a healthy range.

• To calculate yourBMIto determine a healthy weight, click here

She is enrolled in the hospital's mood disorders inpatient program, which helps patients control mood disorder symptoms. But, she says it is not equipped to deal with her severe eating disorder. St. Joseph'sHealthcareonly has an outpatient eating disorder program, which offers weekly group therapy sessions.

Davidson says she's accustomed to long waits for publicly funded spaces. It once took about a year and a half for her name to move to the top of Homewood Health Centre's wait list for an in-patient eating disorders treatment program. At Homewood, patients get weighed regularly, eat supervised meals in a communal dining hall and attend multiple therapy groups daily.

Scarcity of publicly funded spaces

Homewood, Canada's largest in-patient treatment centre for people witheating disorders, has 21 beds allotted for patients struggling with eating issues, centre spokesmanRic Amentwrote in an email.

Ward beds are fully funded by OHIP, Ontario's health insurance program.Beds in semi-private or private rooms carry additional costs of $260 aday and $310 aday, respectively, for Ontario patients, who must pay theadded costs or have their supplementary health insurance plans do so, Ament wrote.

Amentdeclined to specify how many of each bed exist in the program, but said there were more semi-private and private beds than publiclysupported ward beds.

The waiting list both for privately and publicly funded beds is generally long, he wrote.

In Manitoba, CBC News has learned,patients can wait up to a year for publicly funded treatment even in an outpatient program.

The Ontario Ministry of Health and Long-Term Care has made steps towards improving wait times. Ithas almost tripled its investment in eating disorders treatment since 2003-04, wrote ministryspokesman David Jensen in an email.

Thanks to the funding, the province will have the most publicly funded beds for in-patient treatment in Canada, he wrote 24 adult beds and 24pediatricbeds. Jensen did not sayhow many beds currently existor when the new beds will be available.

Private treatment costs thousands

The scarcity of beds makes long wait times, like Davidson's,"very typical," saidAzizaKajan, an employee at Hope's Garden, a support centre in London, Ont., for people with eating disorders.

The centre's site lists average wait times for various programs across Canada,rangingfrom several weeks to years depending on the intensity of treatment.

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Patients willing to pay out of pocket or with supplementary health insurance for treatment atHomewoodwait about two to five months before being admitted, according to the centre's site, while patients relying onOHIPwait between two and three years.

Kajanexplains this discrepancy by saying fewer people can afford to pay privately, so the queue is shorter, while there's a backlog for in-demand publicly funded spaces.

Long wait times for publicly funded spots mean people who need treatmentbut can't afford to pay for itthemselves don't get the help they need, saidKajan.

$35Kof debt for 1st bout of treatment

In 2012, whenHomewoodfinally offered Davidson a spot after about 18 months of waiting, she learned it was not for one of the covetedOHIP-fundedbeds. Her treatment would cost about $35,0000.

Davidson's mother, 55-year-oldhome-careworker Susan Nelson, acquired a line of credit to pay for her daughter'streatment. Others chipped in to pay for some of the treatment as well.

"It was at the point where I was dying and we had no option," Davidson says of her mother's sacrifice.Her mother is now "seriously in debt."

Davidson spent 3-1/2 months at Homewood, and left the healthiest she hadever been.

"My head was in such a different place," she recalls, explaining how she was no longer constantly preoccupied with food. "It was so different, so different. It was amazing."

Butshe quickly relapsed, unable to find enough support from services after Homewood's24/7 care.

While she waited two months for another bed to open up at Homewood, Davidson's eating disorder escalated. Sometimes she would go as long as 72 hours without eating.

"I was almost dead," she explains. "I could have had a heart attack really easily."

She spent December 2012 in Homewood's care, but her mother couldn't afford to pay for further treatment.

After she left, she continued seeing a psychologist, but wasn't making much progress. She moved to Toronto and was put on a wait listfor an outpatient program at a hospital. The program can't accommodate her until March, she says.

"I honestly don't think I would make it," she says. "I really, really don't think that I would make it until March."

$60K fundraiser a last resort

Even if she did, Davidson is convinced the outpatient day program won't be enough support for the severity of her illness and that another extended stay is her best chance for a full recovery.

This is one of the worst feelings any parent can imagine.- Susan Nelson, Ingrid Davidson's mother

Homewoodhas told Davidson and her mother that a spot could become available in the next several weeks.

"This is one of the worst feelings any parent can imagine," Nelson wrote onIndiegogofor thefundraising campaign, which she hopes raises $60,000 by Feb. 27.So far, nearly $33,000 has been raised.